Day 793: Celebration Steps!

Madi had a great morning at school. She zoomed around her class all morning with lots of energy in her walker and asked to be the teacher during calendar time. Madi stood up at the calendar and used the pointer to tell the date and sang the calendar song all by herself! Madi finished her school morning with a visit with Tiffany who gave her some books to have with her at the hospital. 


Jack started his day with his new routine…lounging in bed with Mommy reading lots of books!


Madi spent her afternoon at March of Dimes with Monika working hard and having fun. They practiced using her canes and the biggest celebration of her day was walking the distance of the whole room all by herself!!

Jack & Madi spent their evening playing with Nana while Mommy started getting things organized. They both had a doctors appointment to check on things before leaving. Jacks chest is clear (thank god!!) and just has to keep taking his puffers and Madi is healthy and good to go! 

Day 792: Peppa!

Madi had her final day of Physio today at Grandview. Her next visit will be the week she gets back from St Louis! They spent todays session doing an updated GMFM scale which is a clinical tool designed to evaluate change in gross motor function in children with cerebral palsy. Madi was a bit silly today, but was able to get through each of the exercises in the one session. We will know the results shortly, but she was able to go farther in the series of activities then she was able to the last time she did it. Progress!


Tonight was a special night for Madison… Nana took her and Mommy to see Peppa Pig the musical at the Sony Centre! Madison LOVED it! The music was really cute and it was very comparable to the show. Madison sang and bopped around on Nana’s lap- it was a nice evening out before all the craziness that’s about to hit everyone. Thanks Nana!

Day 791: Last Visits

As the journey to St Louis gets closer, Madi has been saying her good byes and see ya soon’s to friends and family. Today she went for a play with her friend Evelyn who made her an awesome card and they gave each other lots of hugs.


Madi has been negotiating the need for lots of iPad time lately…she’s addicted at such a young age hahaha…So Mommy’s negotiations are now: if the iPad is on…the Gaitors are on. 


Madi did a great job using her strong voice at riding today with Jorge. Her confidence has really improved and she  did a great job playing basketball while trying to keep her balance on his back. 

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Madi & Jack finished their day with a great visit & dinner at Pam and Medfords house. Madi loved all the fun crafting scissors she practiced her cutting with and Jack played with his ball all over the house. 

Day 791: Last Visits

As the journey to St Louis gets closer, Madi has been saying her good byes and see ya soon’s to friends and family. Today she went for a play with her friend Evelyn who made her an awesome card and they gave each other lots of hugs.


Madi has been negotiating the need for lots of iPad time lately…she’s addicted at such a young age hahaha…So Mommy’s negotiations are now: if the iPad is on…the Gaitors are on. 


Madi did a great job using her strong voice at riding today with Jorge. Her confidence has really improved and she  did a great job playing basketball while trying to keep her balance on his back. 

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Madi & Jack finished their day with a great visit & dinner at Pam and Medfords house. Madi loved all the fun crafting scissors she practiced her cutting with and Jack played with his ball all over the house. 

Day 790: Happy Easter!

Madison was up bright and early and was thrilled to see eggs sitting outside her bedroom door! She woke Jack up and the two started hunting for eggs all over the house. Madison logically and carefully placed each egg in her basket. Jack loved to throw the eggs around to try and break them open. They followed a trail all the way to the family room to find their baskets filled by the Easter bunny!


After breakfast, Madi and Jack went for a visit to Pam and Medfords to bake cookies, open presents and play with bubbles! 


Madi and Jack then headed to the beach for the annual Easter Parade!


After the parade, everyone went to Nana & Papa’s to open presents, play games and get ready for Easter dinner.


Easter is always a fun time with the family, but was extra special this year. Everyone got to meet our newest family member- Callum, and Madisom was able to spend time with everyone before departing for St Louis next week. 

Day 789: Supporting Friends!

This morning Madison and Jack went to Variety Village for their gym class. After class Madison met up with a friend named Chenoa who was one of the recipients of money donated from the Romano family. It was so nice to hear of their success story in St Louis and for the girls to visit with one another. Cheonoa showed Madison the scar on her back and Madison now will tell you that Dr Park will be putting a line on her back.


Madison and Jack celebrated Easter tonight with Auntie Em & Grandma and Grandpa Ambos by having lots of food and laughs.

Day 788: A Day Off!

Today was a glorious day! The sun was out and Madi had a free day…no appointments!!

Madi & Jack left the house bright and early to meet up with family at High Park. They went for breakfast and then checked out the zoo and famous wooden castle playground! On their way out, they went for a ride on the park’s train. It was a beautiful day filled with lots of fresh air and fun!



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​  Madi & Jack spent the rest of the day with their best buddy, Ben! They played lots of fun activities, played outside on the swing and even gave each other tattoo’s! Ben gave Madi the cutest pink bear with a Blue Jays outfit he made her from build a bear- Madi is snuggling in bed with it and asked to bring it to St Louis with us. Thanks Ben!

Day 787: Medek!

Madi had a busy day. It started with a visit to a new therapist that a few of her friends see for a therapy called Medek. Mommy had been looking into it for a while but never followed up until now. The therapist wanted to meet Madison prior to Madisons surgery. She was excellent and worked Madison very hard. She was exhausted after. They did lots of balancing activities, weight transferring for walking and used a vibration plate for the first time. 

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After her session, Madi headed to lunch with Alex and Suzanne and then went to March of Dimes for an afternoon of conductive education. While she was busy with that, Mommy & Daddy went to a meeting. The meeting was with her school team for JK to plan for her transition to kindergarten in the fall. Things that were discussed were: support with transitions of the day, toiletting and outdoor play. Equipment needed for the school was discussed so it can be ordered in time. There were 9 adults who all shared their work with Madison and what they will do to support her. It was an incredibly positive meeting with lots of next steps and plans put into place. 

Day 786: Sorority Love!

After school, Madi & Jack went home for lunch and then picked up Pam for a special afternoon outing. Pams friends at the Ajax/Pickering Gamma Gamma Master sorority invited Madison over for some nibbles and tea. They wished her good luck with her upcoming surgery and presented her with a cheque for some fun activities to keep her busy in St Louis after her therapy sessions. They also had an Easter basket for her and Jack full of treats and one of the sorority members made Madi a home made doll. We are so grateful for all the support surrounding Madison’s upcoming journey to St Louis. Thank you!!

Day 785: Last Ballet Class

Madi had a great session at Grandview today working on combined PT & speech. They focused on maintaining a long/smooth sound of voice for speech. She did lots of core for PT. Her planks on the ball were pretty impressive. Jack was a super star and kept himself busy with some new OT toys. 

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Madi had her last ballet class of the year tonight. She has been dancing once a week since September, so everyone was sad that it was the last one. The rest of the class is continuing until June when they will dance in a recital. We are hoping Madi can join the class again next year and dance in the end of year recital with her new legs! Thank you to Suzie and Denise Lester Dance Academy for a wonderful experience that was inclusive and so much fun!


Madi ended her busy day with Shannon to get a massage. Her new bolster was ready for pickup. This will serve her well for stretching and floor time. Thanks Shannon!