Day 1,223: Golf 2019!

Today was the 8th Annual Mike Gregoire Memorial Golf Tournament! This year Madison was able to introduce all our family and friends to her friend James who will be going to St Louis for the same surgery that Madison had in a few short weeks. The tournament helped him out with the costs involved in post op therapy. We are always amazed by all the sponsors and donors that step forward for this event and to all the volunteers and family members who spend so much time getting everything organized and running a fantastic tournament! Thank you to everyone who continues to support Madison on her incredible journey towards independence  and walking!


Day 1,222: This is Six!

And just like that, Madi is 6 years old!

Its gone by so quickly!


Madison started her birthday weekend with a Friday night dinner celebrating Grandpas 65th and her 6th.


When Madison woke up Saturday morning she went straight to her iPad and searched for a birthday song. She then woke up the rest of the house by blasting “Happy Birthday” from her iPad while she also sang it at the top of her lungs. She then climbed into bed with the fam and everyone looked through her baby pics and other birthday pics which she and Jack got a kick of. It was a great way to start her birthday. She then opened her gifts and had a nice breakfast.


It was then time to head to her birthday party! Madison decided she wanted to have a spa party this year. They ate waffles with every topping under the sun and cupcakes too. They then went down to the main spa area to have fingers and toes painted, makeup on, and princess outfits on to start a dance party! It was an awesome party and it was nice meeting some of her new classmates and watching her interact with her girlfriends.

Once the spa was done, Madison headed to Pam and Medford’s house to celebrate. They had a nice visit and she was spoiled with gifts.

It was then time to meet up with the boys at a campsite. Madison LOVED camping this summer and asked to camp one more time before putting the camper away for the season. She had a great celebration playing games, eating cake, roasting marshmallows and having a sleepover with Nate.

The next morning everyone went out for breakfast to finish off the celebrations and then went to the Village for a swim with Ryan.

Madison works so hard and rarely gets to choose how she spends her time so we told her she could pick anything to do for her birthday and then we ended up doing it all! Thanks to everyone for all the birthday messages and gifts, Madison had an amazing birthday!

This week marks the start of fall activities that everyone has been looking forward to. Tonight was Jacks first sea turtle swim class and Madison’s first meeting back with Sparks. Thank you Pam for sewing all of Madison’s badges onto her sash just in time for tonight!


Day 1,221: Grade 1!

Madi had an awesome first week back at school. She started Grade 1! She no longer has a full time EA, she works with two amazing ladies part time, scattered throughout the day. Her recess is now in the ‘big yard’ which she has been loving. She practiced her reading and counting each night for homework and the highlight of the week was her drama class which is every Friday. Thanks to everyone who helped us successfully survive our first week back!



Day 1,220: Goodbye Summer

Madison and Jack had a wonderful summer full of family, friends, new experiences and lots of time outdoors. Madison has many firsts this summer including camp at Variety Village, camping in 4 different Provincial Parks, learning to stand up and walk on grass barefoot, jumping off the side of a pool by herself, doing consecutive jumps on a trampoline and showing more independence with her self help skills. Jack also had many firsts this summer. He played tball with Sportball, rode his first rollercoaster, went to camp, started preschool, learned to catch minnows, and can now dress himself. We are so proud of all they accomplished and are thrilled with how well they spent their summer together having fun and strengthening their bond with one another. Today, their last few hours of summer was spent drawing with chalk, having a dance party, playing outside with bubbles and scooters and enjoying a rocket popsicle. Tomorrow starts a new adventure… Grade 1! Which means less support at school… no more daytime therapies, more activities of Madison’s choice and lots of new experiences!