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Day 862 & Day 863: Wonderland!

We have had some technical difficulties with the blog. Thanks for waiting! Here is what Madison has been up to the last two days: Thursday: Madi had a very busy day – but she was up for the challenge. Her energy was higher, she had colour in her face, swelling almost down and she ate…

Day 861: Back to Business

Madison has now been on her new meds for 3 days and is starting to get back to her old self. She is still a bit swollen and has moments of exhaustion, but her personality and eagerness to be busy is back! Something that is now part of her day is what her doctor called…

Day 860: Childhood Nephrotic Syndrome

For the past few months you may have noticed various posts where Madison has been swollen, not feeling well and very tired. As parents we are always looking for answers and better ways our children can be taken care of with their health. For Madison her major focus since birth has been managing her CP…

Day 859: A Day Of Rest

Madi spent the day recovering on the couch. No Physio, no stretching, nothing. She had a bunch of moments of chattiness and energy and her personality shone through – but mostly just rested and visited with Nana & Papa while Mommy had a ladies afternoon celebrating Sarina and Alan.

Day 858: Popsicles 

Today when Madi got up there was no change from how she had been feeling the last couple of days. She didn’t want to eat or drink, was super quiet and didn’t say much, cried cause her tummy hurt, wasn’t able to go to the washroom and fell back asleep after only being awake for…

Day 857: Vibrafit

Madi had a good start to her day. Daddy took her to Variety Village to do some work with Stephanie. The big focus was walking! She walked up a ramp, did some standing with ski boots & Gaitors and walking with her ski boots!  When Madi got home, Mommy set up her new Vibrafit vibration…

Day 856: Slowing Down

From the moment Madi woke up this morning she was not herself. She was exhausted all day, quiet and didn’t want to eat much or do much of anything. Either she is hitting the wall from therapy overload or possibly getting sick. She is such a little warrior and always tries to move forward with…