Day 1,003: Ballet At Grandview!

Madison has loved seeing Emily at her Grandview sessions. They both share a love for ballet and today Madison was able to try some ballet at Grandview as part of Emily’s project. She is designing a dance program for children living with CP to incorporate into their therapy sessions. Madison loved doing different ballet positions while squatting and moving in different ways related to her on going goals

They also did good work with her single point canes. Madison had a different Frozen sticker on the tops of her shoes and the tops of her canes. Emily gave her verbal cues of which Frozen character to move to help her with her walking patterns. Madison loved it and it worked so well!

Day 1,002: Scattered Mayhem

The last few days have been chaotic… scattered… out of sorts. Possible colds coming our way, push back from Miss Madi on therapies & her home program, out of routine, long hours for Mommy…but then this gem is found in our inbox and all is right…Thanks Megan at Sparks Photography… more cuteness sneak peaks to come…and hopefully calmer, smoother days ahead.

Day 1001: What A Weekend!

The theme of this weekend was…take back the house!

Going back to work, keeping up with therapy, School, daycare etc etc etc has left our home in shambles. Aunt Emily came out for a visit for the weekend and helped get the house back in tip top shape and ready for Christmas decorating!

Everyone was also busy with swimming, Christmas photos, Axe throwing, shopping, stretching and getting sorted for the week. Thanks Aunt Emily!

1,000 Reasons to Celebrate!

Wow! Today is the 1,000th post! I started this blog as a way to heal and share. We were 4 months in to Madison’s diagnosis and I needed a way to share Madi’s journey with our family and friends to loop everyone in and help calm concerns. It was a way to reflect on the day and celebrate all of the small milestones and victories. 1,000 days of small celebrations! My healing journey also turned into a way to connect with others on similar journeys and share helpful information. I am truly proud of all that has been accomplished through this blog and thank all of you for reading, watching and cheering Madi on.

Today was a special session with Stephanie. Madi filmed all her 6-7 month post op videos for Dr Park. Stay tuned for today’s videos and comparison videos from before the surgery – she has made so much growth!

Day 997: Super Nana!

Madi loves her time with Nana on Tuesdays! After school, their first stop was to Neurochangers for some walking.

Then it was time for some dinner and then off to ballet! Madi is doing more and more in her class and loves all the music and time with her friends.

Madi was in the newspaper today helping to raise funds for The Variety Village Christmas Fund by sharing her story.