Madi had a day filled with highs and lows. Mommy wasn’t sure if a full moon was coming, possibly a reaction to her meds which lead to her being wired, a tired toddler or change in routine but Madi was a bit out of sorts this morning which lead to a few time outs and cancelling some things to stay home.
After some rest and quiet/calm time in bed, Madi had some lunch and seemed more herself. She went to see Shannon which was very relaxing and soothing for her tired/sore muscles.
Once Madi was home and finished dinner, she wanted to work on her walking. Madi has been walking on high knees as her warm up before practicing her walking at home. This was very difficult for her to do before SDR. She could do just a few, very quickly before falling forwards. She is now controlled and much stronger.
So proud of our little fish! Madi started swimming with Ryan when she was 18 months old.
Here is a pic from one of their first lessons together
In the past 2 years she has become so comfortable and loves the water. Today she conquered two of her big goals – floating on her back & picking something up from the bottom! She can even walk for multiple steps touching the bottom with no help and loves front floats! We can’t wait to see what she learns next!
After some running around and getting things organized for the week, Nate visited for a play! The besties played in the backyard, had dinner and then bath and pj’s! Awesome summer nights!
Madi is almost 3 months post op! She worked through 3 different therapies today and she got stronger as she went. Mommy was so proud!
Her morning started at conductive Ed camp. She loves all the games and learning that they do while working on her gross motor goals. She LOVED playing Guess Who with Monika, so Mommy added it to the shopping list for later in the day.
After camp Madi went to Variety Village for some Physio with Stephanie. Madi did some work in her walker with weights attached to the back to help her slow down and think about proper steps. They worked on independent walking for almost 45 minutes! Madi took anywhere between 6-20 steps, took a small break and then kept going. Stephanie and Mommy had some tears watching Madi go. She finished her session doing some sets on the total gym.
After a rest and play at home, Madi went to Grandview for Physio with Kate who did a re-assessment of post op goals. They went through some different exercises to assess where Madi is at and what the focus should be for the next 4 weeks. One activity that stood out the most to Mommy was Madi’s high kneeling. Madi could hold that position for only 2-3 seconds before surgery. Today she held it for over a minute and could have kept going but she got bored hahaha. She also was able to do some walking in tall kneeling which looked great!
It’s been a very long and busy couple of months, but days like today make every trip in the car, every appointment, every stretch and exercise completely 100% worth it!
Madi left the house this afternoon and told Jack several times…”sorry Jack! You can’t come to my play date – its girls only!”
Madi visited her friend Sofia this afternoon for a play and movie. They had so much fun together painting, watching a movie, snacking on lots of treats and playing hide and seek.
Madi’s friend Sofia has her own Facebook page where she and her family are trying to raise awareness for SMA which Sofia lives with and is fighting for the cost of treatment in our country. To follow Sofia’s journey and learn more about SMA check out her page:
Sofia’s Facebook Page
Link to Sofia’s News Coverage
Jack had a great swim lesson this morning! He only screamed for 10 minutes and then relaxed and was able to do some floats and kicking and bobs! We think Elmo helped to save the day.
Madi & Jack then got packed up in the van and headed to Welland. As Madison said…”I’m excited to see the Mounties!”. They visited with friends Chris, Meg, Huddy and Jax who were in Welland visiting from out West. The kids had a great afternoon playing and enjoying a BBQ and it was awesome visiting and catching up on life.