Madi’s favourite activity of the day was playing at the park. Now that she is more confident and has figured out how to climb and slide and move in between – she loves going! The more she has been around other ‘typical kids’ the more brave and more risk taking she has done. Today she saw a little girl climbing the outside of the structure and hanging from bars and Madi shouted “I want to do that!” So Madi hanged on the bars for the first time and Mommy was able to let go! It was so much fun and the best long body stretch! When she is at the playground her face always beams with pure joy!
Madison practiced using her new walker outside today. Daddy is going to have to make some adjustments and add weights to the back as Madi was zooming all over the neighbourhood. Mommy couldn’t keep up and thankfully Madi avoided many falls with Mommy’s quick hands. Ultimately Madi is going to use her red flux walker full time. This blue walker that she got from “For the Needy Not the Greedy” is going to help her become more comfortable with the front swivel wheels without worrying about the weight of the flux walker for now.
Madi took several rests to supervise Medford as he was fixing his car.
Madi was spotted in the Toronto Star this week. They featured an article about the conductive ed camps at March of Dimes this summer. Check out the article online with the date of July 28th in the Greater Toronto section if you want to read more about it.
Madison and Jack had a great sleep-in this morning followed by a yummy breakfast. Everyone then headed to the Butterfly Conservatory! It was beautiful! There were butterflies everywhere! Madison loved watching them fly around, eat from pieces of fruit and see them land on people. When they landed on her, she was not too sure and a little scared so she enjoyed watching them from a far.
After a visit with the butterflies everyone headed for lunch and some shopping at the outlets! Madison had a growth spurt this past week and all of her shoe options were snug, so Mommy found her some new runners and crocs that are the perfect support for her.
Madison and Jack had an amazing time in Niagara Falls! It was nice trying new things, spend time with family and have no doctor or therapy appointments or anywhere to be- just family fun!
Madison was super excited to be in her own big girl bed at the hotel…. So excited that she didn’t get much sleep so she met up with everyone for a late breakfast.
When she was all done her pile of bacon, her & Jack and the crew walked to the boat to see the falls. She loved seeing all the water, all the boats, people going all over the place on zip lines and helicopter’s – but she was not a big fan of the mist and water being sprayed all over her.
After a great time on the boat, everyone headed to the Rainforest Cafe for some lunch. Madison didn’t quite make it – she ended up sleeping in the stroller for about an hour and then woke up to the sounds of an arcade and a thunderstorm in the restaurant.
After lunch- Mommy, Daddy and Madi headed to a local warehouse for a special shopping trip. Madi checked out a place called “For the Needy – Not the Greedy” They are a non- profit organization that collect used medical equipment and assistive mobility devices for both children and adults. Madison found herself a blue walker that she is going to use to practice her walking for the flux walker that she owns. The amazing thing is that the equipment for children is no charge. It is all donated from families who no longer need equipment.
Madison and Jack woke up nice and early and hit the road for their first road trip as a family of 4! Madison was excited to go on a mini vacation with Nana, Papa, Uncle Mark, Aunt Nadia and Nate! On the way to Niagara Falls everyone stopped off for a lunch theatre show called “Oh Canada Eh!” The family style food was delicious and all three kids loved the music and dancing. Papa loved the Canadian trivia and everyone loved all the Canadian music being played.
After lunch everyone checked into the hotel, had some quiet time and then it was time to walk to the falls. The kids loved seeing all the water and all the lights and interesting places up and down Clifton Hill. Madison loved the pink lights on the falls and can’t wait for more excitement tomorrow!
Madison had a pretty relaxed day to recover from her cold. She got up nice and early and headed to Pam and Medfords for breakfast. She was very lucky to have eggs, fruit, bacon and toast. She had a wonderful time – thank you Pam and Medford!
Later in the day Madi and Jack met up with Nate for a visit to the local fire station. They learned about fire safety, toured around and saw the equipment and checked out the fire truck. Madi’s favourite part was spraying the fire hose.
Jack is 6 months old next week. He weighs about 20 pounds, is sleeping well, is wearing 12 month clothing, loves tummy time and playing with his sister and loves to eat cereal, carrots, bananas, peas, squash and sweet potatoes.
He is doing really well battling his torticollis. He responds really well to massage and chiro but HATES the stretches Mommy has to do on his neck muscles.
Jack was assessed this morning for a thermoplastic molded helmet. After all his positional therapy and stretches, his head shape is still flat and he is at risk for his skull not closing up properly by the time he is one. They scanned his head to get a digital image of his skull on the computer and with those numbers they determine where on the severity scale he lies. 1 is somewhat normal and a 5 is severe. Poor Jack is a level 5, so the measurements were done, the helmet is ordered and follow up appointments booked. He should receive his helmet in 2 weeks and then he will have appointments every 2 weeks until he is one. The helmet has to be worn 22 hours a day. The orthotist designing the helmet also does Madi’s AFO’s and is using her Blue Jays design as inspiration. Stay tuned…
Madi is a bit under the weather with a cold. After a full morning of lounging she got some fresh air at WindReach during her session with Joe. It was scorching hot! The ride was a bit shorter today because of the heat, but she loved her visit and her ride on the back trail. She was happy to see Pam and Medford who watched her ride and then visit with Joe after to give him his carrot. Madi worked again on taking deep breaths to project her voice with her commands and she practiced keeping her posture tall while taking her hands off. Her confidence has really improved.
Madison and Jack spent some time with Nana later in the day while Mommy got some things done and some more forms mailed. The amount of paperwork and forms that need to be done to provide support for a child with special needs is absolutely insane! It could be a full time job! Uncle Mark also wrote an amazing letter to a local foundation requesting support for Madison for a special home project…more details coming soon…thanks Uncle Mark!
Madison finished her day with a visit with Emily. They worked on walking, stepping up and down stairs and did some good long stretching with her Gaitors and the Nada Chair. During her recent shopping trip to the States, Emily found the socks Madison uses with her AFO’s that have been discontinued here. Thanks Emily!!
Madison was looking forward to today for a few weeks. She would ask every couple days, and then this morning when she was told today was the day….she was SUPER EXCITED! Madison went to the zoo with her buddy Tiffany! Madison’s school is exceptional due to the amazing volunteers that work 1:1 with each child. Tiffany was Madison’s Wednesday volunteer. Mommy and Daddy saw very quickly at the beginning of the school year the special friendship between the two and Wednesday’s quickly became Madison’s favourite day at school. At the end of the school year Madison was sad to learn that she wouldn’t see Tiffany for a few months so everyone exchanged info and made plans to meet up a few times over the summer.
Madison met Tiffany this afternoon at the globe at the front of the zoo. When she saw Tiffany she was so happy and excited. She said hello and then told Tiffany right away what she wanted to see. Mommy left the two of them and off they went.
Tiffany was kind enough to take pictures of their day together. They went to see all of Madison’s favourites: the monkeys, giraffes and zebras. She spent the longest time watching the gorillas. She didn’t want to leave – they were her favourite!
They also saw a really big peacock on their adventure. She really liked it but it scared her when it got close.
They also got some delicious ice cream and played at the splash pad. Mommy & Daddy were thrilled to hear that she used her walker at different points and used it in the splash pad to check everything out. She was so brave!
Madison has been showing an interest in taking her own pictures lately. She used Tiffany’s camera to take a few shots. She did pretty well!
At the end of their visit they went to the carousel for a ride and then it was time to head home. Thank you Tiffany for everything today – Madison had a wonderful afternoon!
Madi started her day with a walk around the neighbourhood to check out a street sale. She picked out some play tools and some dress up magnet games. Her and Nate then went to the park to try the big slide and swings. Their visit to the park didn’t last very long with the heat so they headed home to the AC.
After family nap time, Nana & Papa picked up Madi & Jack to take them to the splash pad to cool off. They played with the snail fountain at the splash pad and kept cool. Madi has a hard time keeping cool on days like today so the splash pad was a perfect choice of activity. Mommy and Daddy were out for a date night so Madi headed out for dinner with the gang and then headed home for bath and bed.
Madi started her day bright and early with breakfast with Nana while Jack and Mommy visited with Doctor Sarah for some adjustments. It was then time to go work with Stephanie at Variety Village!
Madison enjoyed an afternoon at the local early years centre for a class called “kids in the kitchen”. Today’s menu was three tasty recipes with a roll theme. She learned to make a cheesy chicken roll, a cucumber sushi roll and a fruit roll up Rice Krispie roll. Mommy was so proud of Madi for her participation in the class. She listened and followed instructions well, she was able to manoeuvre herself around the classroom in her walker pushing chairs and tables out of the way and figured out how to access the sink by herself to wash her hands.
Madison is still hesitant at entering new environments in her walker when others are not in walkers and often will say things like “I’m a little bit tired” or “carry me and leave the walker” but with encouragement and redirection towards an activity of interest she moves forward and becomes more comfortable and confident. Mommy and Daddy’s goal for Madi from now until kindergarten is to give Madi one opportunity a week to be in an inclusive environment with mostly “typical” children her age to give her more experience and exposure to what her world will be like in JK.