Madison and Monika were thrilled to report that Madison achieved 100 independent steps at CE camp this morning! Woo hoo!
After camp Madison spent her afternoon with Janine and Suzanne. They had lunch and did crafts and played with her baby doll. They also went to visit Great Grandma Gregoire and Madi jumped all over her bed and showed her cane walking.
While Madi was visiting, Mommy & Daddy had a meeting at Madi’s new school. It was extremely positive and everyone is on board with the plan for next week! Everyone was updated on how her surgery went, the diagnosis of nephrotic syndrome, glasses, potty trained, new equipment, new mobility – lots has changed since the last meeting in April. We spoke about the importance of this window of opportunity that Madison has in terms of the surgery and the theory behind neuroplacticity and learning new movement patterns and the importance of working on correct form and gait even thought walking with her canes is slower. They are in support of her using her canes indoors and Walker only outside. We are trying to phase her Walker out. They will offer her lots of transition time and she will have an EA for all of the transitions of the day and all self help tasks like the washroom and getting ready to go outside. Their Ea will follow a schedule that changes each week as the needs of the students in the school change but will be with Madison for the first few days to see how things go.
Later in the day Madi went for a session at Neurochangers. She loves her facilitator Bri – the two talked about Halloween costumes and Thomas the Train! That was then followed by a massage with Shannon. She was super silly but was relaxed and Shannon could do different releases which was new.
She was exhausted at the end of the day but made more gains!
Mommy had her first day back to work today after almost 2 years! Daddy was on his own this morning getting the two crazies dressed, fed, hair done and out the door on time. So much thanks is owed to so many friends and family for helping these past two years, but that’s going to be saved for another day when things settle and arnt so emotional.
Daddy dropped Jack at daycare and then drove Madi to CE camp. The theme this week is pirates! Madi had so much fun decorating a banana like a pirate and she did awesome independent walking – 48 steps!!
Nana picked up Madi from camp and then went home for some lunch. She visited with Papa over lunch and told him all about camp. Nana and Madi then went to a special craft place called Crockadoodle to do some painting!
Madi chose a cupcake shaped jar to paint that she could later put hair clips or elastics in. She had a blast painting!
On their way home, Nana took Madison to her new school to check out the playground. To say she was excited is an understatement. Madi told Nana that she was so excited and that today was the best day ever because she got to see her school. Thanks for the great day Nana!