Day 924: Thank you MOD Conductive Education Camp!

Today was Madi’s last day of summer camp. She did a total of 7 weeks of camp this summer at March of Dimes. It was one of the best decisions we made to send her right after her surgery to help with her recovery. They worked every day on very specific goals, practiced lots of walking and had a blast doing different traditional summer camp activities. She is stronger, walking more and is potty trained – it was a wonderful summer of growth. 

Madi was sad to leave her instructors and friends but was excited to go check out her new school! Madi visited her JK classroom and met her classroom teacher and her support teacher. She LOVED her classroom! She played at the kitchen centre, found her hooks and cubby, checked out her washroom and then spent some time on the carpet looking at the calendar and other things with her teacher. It was a positive visit and everyone is excited for Tuesday!

After some down time at home, Madi went to work with Jo-Anne and to show off her hard work to Daddy who watched her for the first time. Daddy was super impressed!


Day 923: Craftie Kids

Madison had a fun time at CE camp today. She did lots of walking and crafting. She made and painted a parrot for pirate week!

Madison and Nana then spent the afternoon together doing different things.

They made cupcakes, made a thank you card for Melissa, had some lunch and had some quiet time. Then they went to see Melissa at Variety Village for a workout and their last summer class together. Thanks so much Melissa for working Madi so hard this summer- she had a blast!

Jack had a great day with his buddy Owen at Jackie’s! They made their own crafts which was super cute! 

Day 922: 100 Steps

Madison and Monika were thrilled to report that Madison achieved 100 independent steps at CE camp this morning! Woo hoo!

After camp Madison spent her afternoon with Janine and Suzanne. They had lunch and did crafts and played with her baby doll. They also went to visit Great Grandma Gregoire and Madi jumped all over her bed and showed her cane walking.

While Madi was visiting, Mommy & Daddy had a meeting at Madi’s new school. It was extremely positive and everyone is on board with the plan for next week! Everyone was updated on how her surgery went, the diagnosis of nephrotic syndrome, glasses, potty trained, new equipment, new mobility – lots has changed since the last meeting in April. We spoke about the importance of this window of opportunity that Madison has in terms of the surgery and the theory behind neuroplacticity and learning new movement patterns and the importance of working on correct form and gait even thought walking with her canes is slower. They are in support of her using her canes indoors and Walker only outside. We are trying to phase her Walker out. They will offer her lots of transition time and she will have an EA for all of the transitions of the day and all self help tasks like the washroom and getting ready to go outside. Their Ea will follow a schedule that changes each week as the needs of the students in the school change but will be with Madison for the first few days to see how things go. 

Later in the day Madi went for a session at Neurochangers. She loves her facilitator Bri – the two talked about Halloween costumes and Thomas the Train! That was then followed by a massage with Shannon. She was super silly but was relaxed and Shannon could do different releases which was new. 

 She was exhausted at the end of the day but made more gains!

Day 921: Back to Work!

Mommy had her first day back to work today after almost 2 years! Daddy was on his own this morning getting the two crazies dressed, fed, hair done and out the door on time. So much thanks is owed to so many friends and family for helping these past two years, but that’s going to be saved for another day when things settle and arnt so emotional.

Daddy dropped Jack at daycare and then drove Madi to CE camp. The theme this week is pirates! Madi had so much fun decorating a banana like a pirate and she did awesome independent walking – 48 steps!!

Nana picked up Madi from camp and then went home for some lunch. She visited with Papa over lunch and told him all about camp. Nana and Madi then went to a special craft place called Crockadoodle to do some painting!

Madi chose a cupcake shaped jar to paint that she could later put hair clips or elastics in. She had a blast painting!

On their way home, Nana took Madison to her new school to check out the playground. To say she was excited is an understatement. Madi told Nana that she was so excited and that today was the best day ever because she got to see her school. Thanks for the great day Nana!

Day 920: 2nd Annual SDR Picnic!

Today was a glorious day! Madison & Jack went to celebrate with their SDR community at the 2nd Annual Picnic! Madi always LOVES being around her friends that use walkers or canes or wheelchairs to get around like her, and to be around others who had the same surgery as her is always special. We chatted with families who are a few years post op, families who are about to leave for St Louis and families who are researching and deciding if the surgery is right for their child. No matter the point in journey of the families there, everyone was there to celebrate their amazing kids! They did yoga, got their faces painted, ate cotton candy, participated in a celebration race, played in the playground, watched balloon animals being made and took a group picture together. It was a great afternoon! 

Day 919: A Day Downtown

As the end of summer nears, Madi took a break from her crazy schedule and headed downtown for some shopping with Aunt Emily. 

Madi was on the hunt for her JK backpack! Most kids pick a bag with their favourite character on it and dont worry so much about size, straps etc. but Madi wants to be able to wear her backpack just like her friends no matter if she is in her walker or canes or holding someone’s hand – so Aunt Emily scoped out some good stores and Madi found a bag! It’s super cute, stylish & is functional. Thanks Aunt Emily!

Day 918: More Firsts!

Madi was excited to show Jack her “robot walking” this morning. The two watched Thomas as Madi marched away.

27 minutes, 1080 steps, 520 stairs!



After a great session, Madi headed to VV to work with Stephanie! They did lots and lots of walking! Madi walked all the way from Stephanie’s office to court one in the field house, needing help only two times! The most exciting part of Physio today was watching another first. Madi was able to squat down, pick up a ball, stand back up and then throw it! She was super proud of herself! Thanks Cathy and Mya for all the cheering and support! 


Madi & Jack had a great afternoon with Nana! Lunch, baking cookies, books, colouring & a special shirt for JK! Thanks Nana!