Madison had an awesome morning at school! She was super excited to show everyone her new Peppa Pig backpack- thanks Nicole!
Last week we met with Madisons teachers to discuss plans for kindergarten, getting her ready for surgery, after surgery etc. We gave them the pre-op exercises from Dr Park to be able to see some things we are focusing on before surgery. Today when we picked up Madison from school, her teacher had all the exercises photocopied, cut out and laminated on a key ring on her belt- and in other places in the classroom and gym so that whenever Madison has the opportunity for floor time – someone can do some pre-op exercises with her. They are also including some of her friends in the exercises to make them fun and friendly. LOVE her school!!!!
When Madi got home from school she went straight to her gym to do some walking on the treadmill and walking between furniture.
Madi and Jack had a great time playing hide and go seek and dancing with Nana & Papa while Mommy was coaching.
Madi and Jack had a sleep in this morning while Mommy had some radio interviews with 640 and 1010. They asked great questions and it was awesome to continue sharing our story in the hopes of helping others.
Madi skipped school to get some sleep and to go to a vendor who was in town from Quebec to check out a bike. Madi trialled the bike, got measured and picked her accessories and then the order was placed! She will be getting her new purple trike in 2 weeks!
Madi made front page of The Toronto Sun again today! So proud!
She spent her afternoon relaxing after the last few days of craziness. Loves her new headphones and easy hold iPad case.
Madi had a great swim tonight! Lots of good work on transitioning from back floats to tucking her legs in to try and stand up. She also did lots of great walking around the hot pool.
Jack loved watching his big sister swim but he also loved checking out all the basketball in the gym
Madi made her way to Queens Park today to help represent all the families in the province who have not received OHIP funding for the exact procedure she received funding for just two days ago.
Highlights from today:
Toronto Sun Article Link
CTV News Coverage Link
Global News Link
CBC News Link
CP24 News Link
We would like to share some exciting news. Late last night we received a letter, sent by courier, from the Ontario Ministry of Health, approving the OHIP funding for Madison’s surgery. We want to thank everyone for all of your help getting us to this place. We are proud of the time and energy put into this battle that we came out of with success. We now have the exciting task of redistributing some of the excess funding, that was generously donated to us, to other families who are in need of financial assistance to get to St Louis. We will move forward with our last fundraiser planned for March 18th as a celebration of achievements and to help others like Madison. It will also be a time for Madison to visit with her family and friends before heading to St Louis.
Some of you may also have heard that our fight for SDR funding was raised in the Ontario Legislature yesterday by Jeff Yurek The Honourable Member for Elgin-Middlesex-London.
Here is the link:
Yurek is also planning a Press Conference for next week and has invited all SDR families to attend. He also plans to address this issue again next week in the legislature. In the meantime I am mobilizing all the SDR families to take advantage of this amazing opportunity to force significant change that will hopefully result in funding for all families in Ontario.
Thank you so much from Madison and on behalf of all the SDR families who will hopefully benefit from this unbelievable effort from our family and friends.
Thank you to all of our donors and the different fundraising initiatives for helping us get Madison to St Louis and ensuring she can have the therapy that she needs when she returns home.
Don’t let this little pink princess fool you… as soon as she was home from ballet she attacked a wall squat set like a warrior! So impressed with her “wall sits”. She counted out loud the whole time!
Que ‘Rocky’ theme music… 63 days until Madison’s departure to St Louis!