Madison tried her best and worked her butt off at physio today. She started with squating exercises to strengthen her quad muscles and get a good stretch to prepare for standing. She practiced standing up from the floor not holding onto anything. Stephanie also did some excellent treadmill training and Madison was the strongest she has ever been on it. They did lots of walking and Madison took 6 independent steps and stood independently for 20 seconds!
Before dinner Madison headed outside in her walker to check on her garden. One of her new responsibilities around the house is to water her seeds each night to check on her flowers and her bee visitors. She takes is very seriously – she never forgets about her job.
At the end of a long week, family snuggle time is the best!
Today was a super jam packed day for the Ambos family. Madison had some exceptional experiences today that made for a positive day, and Mommy and Daddy made some progress with their “to do” list.
Madison’s teacher reported that she took some independent steps before music circle this morning. One of her teachers was so happy to cheered and had some tears of joy!
Madison had a good ride on Joe this afternoon. Madison told Mommy and Daddy that she let go of Joe to touch her helmet and then touch her toes. They are working on balance, coordination and core strength. Madison also played a game with Joe who was wearing a necklace made out of rings. Madison had to try and reach forward to touch the different coloured rings while Joe walked around outside. It was a beautiful day!
Madison spent some time with Aunt Nadia, Uncle Mark and Nate while Mommy and Daddy had a meeting with their Social Worker. Madi and Nate had lots of giggles and played in Nates fort. Mommy and Daddy spoke with their Social Worker about funding for renovations, ways of talking to Madison about her challenges, upcoming scheduling with her new developmental pediatrician, checking that Madison is on “the list” for the CP specialist coming from out west, investigating community programming for the summer etc. etc. etc.
Mommy also heard back from one of the school options for Madison for September 2017. Mommy and Daddy will be going to meet the principal in a few weeks to have a tour and see what life would be like for Madison in a regular full day kindergarten class so that decisions can be made around what the best fit will be for her. A few other schools will be looked at in the next few weeks including Grandviews school before everyone goes on vacation for the summer.
While dinner was cooking, Madison helped Daddy water all the flowers. She loves her job of filling up the watering can from the rain barrel. She was especially excited to see a big fat bee flying in the garden that she planted to save the bees!
Madison was excited to sing Happy Birthday to Nana today! She can’t wait to celebrate this weekend!
Madison did a great job at the pool with Ryan. She is getting so confident with walking up and down the ramp by holding onto the rails. They spent most of their time in the warm pool to help her tired leg muscles. Her legs are still quite weak from the Botox last week. At the end of her lesson Madison helped Mommy coach Ruby in the deep end. She loved watching all the “big girls” swim.
Madison had a great afternoon with Grandma and Grandpa. She was a big girl and got in and out of bed all by herself at nap time and also used the potty.
Madison and Emily worked on a bunch of skills tonight. Emily noticed right away the difference from last week to this week with the addition of Botox. Her and Madison practiced off roading outside in her outdoor walker. Madison moved from flower to flower trying to pick them for the bees. She also practiced walking on uneven ground with her ropes. It was also tricky because the grass was wet from the rain so she slipped a few times and really had to think about her foot placement. When they went back inside they did some fine motor practice with scissors and crayons while getting a good deep stretch in her leg Gaitors. She wore them for a full 30 minutes – a new record!
Madison had a great morning at Pam and Medfords. She loves playing with the special gold horses and her pink ball. She was very excited for her tea set gift Pam and Medford gave her. She talked all day about her pink tea and her purple plates. Jack is still under the weather, but he loved getting cozy in his new quilt. Thank you Pam it’s beautiful!
This afternoon after her nap, Madison played with Carter and Stitch in the family room. While Mommy was feeding Jack she noticed that Madison was talking to herself in a whisper. Madison was whispering the steps she needed to take to sit in her bouncy chair by herself. She was standing at the ataman, took a step backwards, bent her knees to a squat position, froze in the squat position while she felt with her hands for the chair behind her, and then sat down. She whispered to herself the different steps she needed to do to sit. It was so exciting and rewarding to see the transfer of what she has been working on in therapy, to a real life situation at home. Next time she does it Mommy will make sure she has her phone nearby to catch a picture or video to share.