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Day 538: Catching Up In Weight! 

Madi and Jack started their day by going back to Grandview. Jack had a quick stretching session with Kate which is always a scream fest – but sooo good for his neck muscles. Madison’s referral for Botox went through and she had a check in this morning to assess her muscle catchments, range, extension etc.…

Day 536: Madi & Jack at Grandview

Madi & Jack spent their morning with Pam and Medford while Mommy took some much needed Mommy time and got a hair cut. Madi showed Pam her new bear puzzle and played with Jack and his toys. They had a great time and didn’t want to leave.  Later in the day they visited Grandview to…

Day 535: A Day at the Orthotist 

Madi and Jack had a visit with their orthotist today. What was meant to be a 45 minute appointment for two ended up being 1 hour and 40 minutes of trying to play and distract and entertain. It also meant Madi missing her ride with Joe today. The good news is that Jack got his…

Day 534: The Cousin Mini Olympics!

Madison and Jack love starting their day by playing candy crush with Daddy in bed.  Madi, Nate and Jack spent their day with Nana and Papa! They went to Variety Village to play in the gym. They participated in the cousin olympics! They did an obstacle course, raced each other around, played catch with different…

Day 533: Family Project

Mommy and Daddy were happy for the weekend to come. Things get done around the house and everyone gets to spend time together with no major plans. ​​ Mommy and Daddy love weekends but Madison does not do so well on weekends. She does well with routine, structure and a day full of activity. After…

Day 532: Amazing Walking!

Madi has been extremely busy lately with appointments, therapies, camp etc. Sometimes it’s hard to see her gains and with her Botox pretty much being gone, it has seemed lately like she has been at a stand still and regressing with some of her skills. She is tight and in pain some days which has…

Day 531: Madi’s Getting a Playground!

This is a secret…Madison does not know!! Mommy received the best phone call today! Million Dollar Smiles called and Madi is getting a playground for her and Jack for the backyard!  Million Dollar Smiles is an organization that brings playgrounds to the backyards of children dealing with critical illnesses or to children with different physical…