Day 506: ZOO!

Madison was looking forward to today for a few weeks. She would ask every couple days, and then this morning when she was told today was the day….she was SUPER EXCITED! Madison went to the zoo with her buddy Tiffany! Madison’s school is exceptional due to the amazing volunteers that work 1:1 with each child. Tiffany was Madison’s Wednesday volunteer. Mommy and Daddy saw very quickly at the beginning of the school year the special friendship between the two and Wednesday’s quickly became Madison’s favourite day at school. At the end of the school year Madison was sad to learn that she wouldn’t see Tiffany for a few months so everyone exchanged info and made plans to meet up a few times over the summer.

Madison met Tiffany this afternoon at the globe at the front of the zoo. When she saw Tiffany she was so happy and excited. She said hello and then told Tiffany right away what she wanted to see. Mommy left the two of them and off they went.

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Tiffany was kind enough to take pictures of their day together. They went to see all of Madison’s favourites: the monkeys, giraffes and zebras. She spent the longest time watching the gorillas. She didn’t want to leave – they were her favourite!

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They also saw a really big peacock on their adventure. She really liked it but it scared her when it got close.

They also got some delicious ice cream and played at the splash pad. Mommy & Daddy were thrilled to hear that she used her walker at different points and used it in the splash pad to check everything out. She was so brave!

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Madison has been showing an interest in taking her own pictures lately. She used Tiffany’s camera to take a few shots. She did pretty well!

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At the end of their visit they went to the carousel for a ride and then it was time to head home. Thank you Tiffany for everything today – Madison had a wonderful afternoon!

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Day 505: Chillin with Family to Beat the Heat!

Madi started her day with a walk around the neighbourhood to check out a street sale. She picked out some play tools and some dress up magnet games. Her and Nate then went to the park to try the big slide and swings. Their visit to the park didn’t last very long with the heat so they headed home to the AC.


After family nap time, Nana & Papa picked up Madi & Jack to take them to the splash pad to cool off. They played with the snail fountain at the splash pad and kept cool. Madi has a hard time keeping cool on days like today so the splash pad was a perfect choice of activity. Mommy and Daddy were out for a date night so Madi headed out for dinner with the gang and then headed home for bath and bed. 


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Day 504: Kids in the Kitchen!

Madi started her day bright and early with breakfast with Nana while Jack and Mommy visited with Doctor Sarah for some adjustments. It was then time to go work with Stephanie at Variety Village!

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Madi and Stephanie did LOTS of walking!! She also climbed up and down a tower of mats and tumble forms and practiced crawling to standing on slanted mats. 


Madison enjoyed an afternoon at the local early years centre for a class called “kids in the kitchen”. Today’s menu was three tasty recipes with a roll theme. She learned to make a cheesy chicken roll, a cucumber sushi roll and a fruit roll up Rice Krispie roll. Mommy was so proud of Madi for her participation in the class. She listened and followed instructions well, she was able to manoeuvre herself around the classroom in her walker pushing chairs and tables out of the way and figured out how to access the sink by herself to wash her hands. 


Madison is still hesitant at entering new environments in her walker when others are not in walkers and often will say things like “I’m a little bit tired” or “carry me and leave the walker” but with encouragement and redirection towards an activity of interest she moves forward and becomes more comfortable and confident. Mommy and Daddy’s goal for Madi from now until kindergarten is to give Madi one opportunity a week to be in an inclusive environment with mostly “typical” children her age to give her more experience and exposure to what her world will be like in JK. 

Day 503: Swimming!

Madison and Jack had a nice visit with Ruby and Sara this morning. Madi played with Ruby’s toys, they went for a quick dip in the pool and played with both kitty’s. Madi also had her favourite lunch-chicken and fries! 


Later in the day Madison had her swim lesson with Ryan – her second swim of the day! She was not very cooperative with practicing back floats and bobs but she was happy to practice some walking down the ramp and playing in the fish boat. Ryan did a great job trying to switch things up for Madi, but her mind was clearly set on playing today. 

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Day 502: Puppet Show!

Madison and Jack had a great time at the library with Nana this afternoon. Madison sat and read some books before the show with some other kids. The puppet show was based on the book Petunia. Madison loved watching and asked questions throughout the whole show. Her love for books and stories is awesome!


After nap time, Madi helped Jack in his jolly jumper. Most likely not the best decision for Jacks neck, but worth a few minutes of giggles and sibling fun!

Day 501: Play Date!

Madison had a great morning with her buddy Ben! They played with his kitchen and food toys, and then went outside for bubbles and some chalk fun on the wall while they both practiced standing in their walkers. For lunch they had Madison’s favourite- chicken fingers and fries! After lunch they played in Bens cool playroom. Madi didn’t want to leave so she shut the door and barricaded it so herself, Ben and Bens Mommy couldn’t get out. She is already asking for another play date – she had a fun morning!


Madi then headed to Grandview for the afternoon for both PT and OT. It was her last sessions and she is now on a break until mid September. Kate adjusted her walker to make it taller and took some measurements of Madison’s feet and muscle catchments to use as comparisons before her next Botox scheduled for September when her blocks start up again. They finished with some walking in her vest. During OT she worked on finger strength and control with the putty and some pinching activities. 

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Day 500: Good Luck J.R.!

Madison and Jack went to the Early Years Centre this morning for a play with Nate!


After a great play, Madison went up to WindReach for a ride on Joe. Madison’s friend J.R. rides Joe before her on Mondays. Today was his last lesson because he is headed to St. Louis next week to receive SDR surgery from Dr. Park! They will be staying there for a month after the surgery so Madi won’t see her buddy for a while, but everyone is very excited for how the surgery will be life changing for him. Currently SDR is not offered in Ontario so his parents have made the brave and amazing decision to take him to St. Louis to give him the gift of new legs! We are so happy for them and can’t wait to see how everything goes. To wish J.R. good luck and give him comfort, Madison gave him a Paw Patrol cape today with his name and surgery date on the back for him to have as a momento for when he is older and to keep him cozy while in hospital. There are many families in the same situation in our province who are faced with having to seek out options for their children and fundraise for the surgery. If you haven’t already done so, please sign the petition. 

https://www.change.org/p/hon-dr-eric-hoskins-minister-of-health-and-long-term-care-ontario-health-insurance-plan-approve-selective-dorsal-rhizotomy-surgery?recruiter=544484387&utm_source=share_petition&utm_medium=facebook&utm_campaign=autopublish&utm_term=des-lg-no_src-no_msg

Also, if you would like to donate to J.R. for his surgery and rehab, here is his fundraising page:

http://www.jrsjourney.ca/




After a great afternoon, Madi and Jack enjoyed some play time at home.