Madison spent her afternoon with her Aunts Janine and Suzanne. She worked hard at March of Dimes on sitting and walking with ropes and bars. Madison loves working with Monika.She is making so much progress and we are proud of all her hard work.
She also worked on her wall standing at home during the Jays Game. She loved cheering “YA BLUE JAYS! She clapped her hands and danced while standing against the wall.
Madison is taking part in a study funded by the Ontario Brain Institute through CP-NET that is collecting information about kids in Ontario who have been diagnosed with CP. Their goal is to better understand how many kids are affected by CP in different parts of Ontario and to better understand the causes of CP.
The study is for children aged 2-7. Madison’s participation will help allow researchers to study the causes of CP, improve diagnoses and develop treatments and interventions. They hope to find ways to prevent CP and improve care in the future.
If you are in the Grandview catchment area and want to participate you contact Angela Kielbowski at Grandview. If you are in the Bloorview catchment area the Principal Investigator leading the study is Dr. Darcy Fehlings at Holland Bloorview Kids Rehabilitation Hospital.
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A Reminder if you would like to purchase a Happy Soul Project ‘Different is beautiful’ calendar we will be placing our order this coming Thursday.
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Physio of the day:
This afternoon Madison had no appointments so she spent the afternoon doing activities at home. One of her activities was standing independently. Madison started by sitting in a straddle position on Mama’s leg. She then says “nose over toes” and presses up to a standing position. She then squeezes her legs against Mama’s legs to try and hold herself up in a free standing position. She is able to hold it right now for about 1 second.
Madison spent her morning playing around the house in her walker. We have made some room in the dinning room and hallway so she has more space to get around in her walker.
Madison then met up with Nate, Nadia and Mark for a super early Thanksgiving dinner before watching the Jays game. Her and Nate cheered loud and practiced throwing balls and playing catch while watching the game. Go Jays Go!
Madison had a great day with Nana and Papa. Her sleepover was a success! After breakfast they went to the bluffs to feed the ducks and then later spent time with family at The Hunt Club for a big Thanksgiving dinner. She loved her visit with Nate and Molly. We are thankful for family and that Madison has so many people who love her and look out for her.
Madison moved into her big girl room tonight. She loved it until it was lights out. This pic is from bedtime in her first big girl bed…not a happy girl
One hour later…out cold!
Madison’s new big girl bedroom was completed today. Mamma and Dadda spent the day getting things finished up and then went out to celebrate their Anniversary…which meant….sleepover at Nana & Papa’s for Madison!
Its hard to believe Madison has been in the same room for 2 years, and starting tomorrow she will be in her new room. Time is going by so fast, but she is ready for a new room, new challenges and time to adjust and develop new routines before her little brother arrives.
Madison’s sleepover started out with a nice walk in the neighbourhood and playing with her new pumpkin. She had her favourite dinner (chicken fingers & fries) and learned how to sing the Blue Jays song with Papa. She had a quick bath, snuggled into her new pj’s and was off to bed.
The moment you have all been waiting for is here…The Happy Soul Project Different is Beautiful calendar pre-order is now available. We will be doing a bulk order with 25% off. If you would like to order a calendar through us please email your name and how many calendars you would like to katherinegregoire@hotmail.com. Thank you to those who have already placed your order with us through Facebook. We will place our order on Thursday October 15th. The calendars are $25 and then the discount is applied. Here’s a sneak peak at one of the bio pages at the back of the calendar…see if you can spot our special peanut. We will have them all delivered to our house to avoid shipping costs and then we can drop off to all who have ordered.
Background info on the calendar:
“Our 2016 #differentisbeautiful Calendar “shouts from the rooftops” Happy Soul Project’s message, that “What Makes You Different Is What Makes You Beautiful.” This year it features 48 children with exceptionalities, rare disorders, cancer and vast syndromes, all proud to celebrate who they are.
This year’s calendar is dedicated in memory of Maiysn, the inspiration behind our Kick-It-Capes .
Please note this is a Pre-Order so calendars will ship as soon as they are printed in the next few weeks.”
Now that Madison is growing and is wanting to be more independent we are reflecting on our different layouts in the house to ensure she can access what she wants. We are still in the process of getting her new bedroom ready but one of the things we wanted to have in the space was somewhere she can sit to get herself dressed independently. Currently, Madison is still being changed on her change table. Her OT recommended that she start learning to dress herself from a seated position. We got her a good sized sturdy chair and hung hooks (from her buddy Charlotte) fairly low on the wall next to the chair. The plan is for Madison to get out of bed each morning, side step and crawl to the hooks to reach her cloths and then sit down in her chair to get some help to get dressed. The end goal is for her to one day do this herself and to dress herself. There is enough room for her walker to be used in the space once she is using it more freely.
Today is World CP Day! People all over the world spent the day spreading awareness and celebrating the lives of people with CP. This is Madison’s first World CP day as this time last year she was not diagnosed. October 21st 2014 was Madison’s official diagnosis date.
Madison spent her day celebrating with her friends at school. She took in green cupcakes and wore green to spread her own awareness and joy.
After school Madison spent her afternoon with Janine and Suzanne having lunch and going to March of Dimes for her conductive ed class. She worked really hard and attempted walking with the 2 cane walkers. She then spent her night in the dark as the power went out so no leafs game watching for her.
Happy CP Day to all of our new friends and family in our awsome little community that we are so proud to be a part of!
Tomorrow is World CP Day! Toronto is raising awareness by lighting up the CN Tower and City Hall green tonight. Catch it on the news or if you live within eyesight take a photo and post to help raise awareness.
Madison tried her shirt on tonight and got all her green things ready for her party at school tomorrow.
Madison spent her afternoon with Nana and Papa and made Mama and Dada cookies for their anniversary. She also worked hard at colouring a picture for them. Nana and Madison worked on counting cookies to the number 10 and worked on her letters. She then went with Mama and Dada for dinner to celebrate!
Madi Moves 