Month: July 2017

Madi had a great time at camp this morning. She is really progressing with her pink canes. 

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After camp, Mommy had a meeting at Variety Village and Madi worked with her trainer & buddy, Melissa. They did lots and lots of walking around the track, climbing, squat pushes on her scooter and she moved non stop for 1 hour! Thanks Melissa!

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Madi & Jack had a blast at softball tonight. They chased their cousin Nate everywhere and did fantastic cheering. Mommy heard Madi cheer for her with a big loud voice. Madi was also thrilled to receive some home made maple syrup – thanks Malcolm!

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Amongst all the craziness of life with non stop appointments, therapies, kilometre after kilometre in the van and lots of hard work, moments like today happen and put everything in prospective. Mommy and Madi shared this moment together today while Jack was napping- it was special and we’re happy we caught it on video. Madi has been working so hard, is now 2 months post op and things seem to be really moving forward and coming together. 

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This stool was a great purchase and has really helped Mommy & Daddy to get down to Madi’s level to assist her with walking, standing and even using the potty.

Madi had a great morning at camp doing some great independent steps and she is thrilled that her buddy Ben is at camp too! Madi also had riding today and had lots of fun. Her voice was loud and she was so confident leading her horse in the ring and outside. She also opened the barn door on the way out and shocked Mommy she could push that weight.

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Madi had an awesome day celebrating people we love!

She was thrilled to attend Jessica’s bridal shower at The Hunt Club with so many special ladies surrounded by yummy treats and a beautiful view.

While the ladies were having tea, Jack was at home playing in the flowers with Elmo!

Then it was time to meet up with the boys to celebrate Aunt Nadia’s birthday! 

Madi continues to make progress as her strength and confidence increases. Today she discovered she can now climb on and off chairs all by herself!

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​Madi and Jack have so much fun playing together, it’s so awesome to watch their relationship develop.

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Madi & Jack had a family BBQ today to visit with cousin Meredith who is home from out west and to celebrate all the summer birthdays. Madi did a great job zipping around the backyard in her walker chasing Nate and Jack.

Madi had an amazing first week at March of Dimes Conductive Education Camp! A highlight this week was her continued progress with her tripod canes. 

Madi also had a great lesson with Ryan today. They did lots of work on Madi kicking from her hips by keeping her knees straight using Gaitors in the water. She is also getting much more confident with standing independently in the water. Madi loved swimming with the pool wind up toys so Ryan had Madi pretend she was a wind up toy to get her kicking and moving – she loved it!

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Madi had a great day at camp. She was very proud of herself for using the potty and was excited to try and eat lunch all by herself. She had high energy all morning and worked hard. 

While Madi was at camp, Jack was at My Gym for his first gym class of the summer. He LOVED it!!

Madi also had an amazing session with Jo-Anne this afternoon. She was obsessed with the baby shark YouTube video and ball popper shark which was great – she was completely engaged and having fun and was able to work hard. 

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Before the end of a busy day, Madi had a nice visit with Emily and went swimming at her house. They swam for over an hour which must of felt great for Madi and her tired legs. They had a Popsicle and did some activities before going home for dinner and bed. Thanks Emily!

Madi is back! Mommy had a moment of tears today watching Madi be amazing. She was full of spirit, strength, happiness and was like her old self that we haven’t seen in what seems like a long time.

She met with her kidney specialist this morning who had great news – Madi seems to be responding very well to her treatment and may be on her way to remission in the next few weeks. She no longer needs to have her fluids limited and her meds switched to crushed pills which is much more managable. She is using dip sticks to keep track of protein in her urine in a log book. She will see her doctor next in 5 weeks to revisit meds and dosage.

Potty training has been on and off. It’s been tricky with all the events over the past year. Since her SDR surgery she has more awareness and is better able to understand the feeling of needing to use the washroom. She had an amazing day today and is showing interest and determination again… She used the potty successfully 4 times today!! She was so proud of herself!

Madi showed strength and confidence during her Physio session with Kate this afternoon. She practiced lots of walking and did 4 independent steps! 

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Madi and Jack had a great dinner with Pam and Medford while Mommy & Daddy met with their case manager from Resources for Exceptional Children to finalize details with Madi’s transition to kindergarten. She is an amazing liaison who connects and helps manage all of Madison’s support systems. She visited Madison’s school last week to ensure all equipments and reno’s were under way for September. She also spoke about the amount of EA support Madison will receive. She also met Madison’s teachers and toured her classroom and everyone is excited for September. 

Madi had her first day of conductive education camp today! She did great! Attempted to use the potty, did lots of walking and loved hanging out with her camp friends. She will be spending 7 weeks at March of Dimes Conductive Education Camp, and we can’t wait to see the progress she makes with them!

Jack had his first toddler class at the YMCA today. Other than circle time, he loved it! He played with playdough, sang songs, read books and ran all over the place throwing balls and cars and whatever he could find.

For those that don’t know, Variety Village offers one to one fitness conditioning classes for children aged four and older. It involves individual instruction to increase coordination, endurance, flexibility and fitness and they also consult with physiotherapists to work on common goals. Madison had her first class with Melissa today and she loved it! They worked together for an hour on climbing, walking around the track in her walker, practicing stairs and work on the wobbly mats. She moved for the hour, was sweaty and loved it!

Madi’s day started out with a special trip to the nail salon with Mommy and Aunt Emily. Pink sparkles was her choice…shocking!

She worked hard with Stephanie today at Variety Village. She is still pretty weak since her setback last week and requires more breaks during a session, but she still digs deep and pushes through despite everything stacked up against her. Today’s big focus was standing, walking, and squating to stand with ski boots on. They help her stay grounded and supported for standing and encourage a heel toe strike when walking. She did really well.

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Madi’s equipment for her home stretching/Physio etc has been scattered around the house as the basement went through some changes with moving things around to make more space. Thanks Aunt Emily for helping us get organized and finding a place for all Madi’s things to make her exercise time more efficient and easy to access. 

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