Browse by:

Day 1,128: Appointments!

Madi took a day off camp today to catch up on some appointments and to get started on some 1:1 physio time. First up was a visit to her nephrologist Dr Wong to go over how her surgery went and to see how she’s responded… no protein spilling and clear pee makes for a great…

Day 1,127: Slow & Steady Wins the Race

Madi had another great day at camp and already was able to do more then yesterday! She did lots of standing and walking in her walker and today she attempted walking up and over wooden boxes. She also decided to try and walk out to the car after camp all by herself, and after a few…

Day 1,126: Back at Camp!

Madi was happy to be back at camp today at March of Dimes, especially because a bunch of her friends are there this week too! She was able to manage a full 6 hour day with lots of standing and walking practice. With about an hour to go, her legs were starting to get sore…

Day 1,125: Home From Surgery!

Madi was super excited to get home to these two on Saturday! She spent her last day in St Louis sleeping in, packing and getting her nails done. Bye bye St Louis! Thanks for everything! Sunday was her first full day at home. It was full of highs and lows, which was expected. She was…

Day 1,124: Discharge Day

Madi was woken up from her hospital bed at 5am for Dr Dobbes team to check her legs and then give her clearance to be discharged. She ordered some breakfast, got changed out of her gown into some real clothes and then got ready for PT. When she is sitting, crawling or moving around the…

Day 1,123: PERCS Surgery

Madison was up bright and early (4:45am) to have some breakfast before her cut off eating time before surgery. She thankfully fell asleep after she ate a little to get some more rest. Once she was up for the day, she kept busy colouring and then went for a swim. She loved the hotel pool…

Day 1,122: A Free Day!

Madison’s team at the hospital had booked her pre-op stuff yesterday so that if they needed more lab stuff done or any other appointments they would still have today as an option before the surgery. They were fine with everything yesterday, which meant a free day today! Madison’s day started with a trip to the…