Day 962: The Journey Continues

Madi had a good day at school. Her literacy centres revolved around the letter ‘I’ and healthy eating – apples! In gym class she played soccer and ‘What time is it Mr Wolf’.

After school Madi & Nana hung out and then went to ballet where Madi and Kiera were partners in class!


Madi has been having a hard time lately with her Nephrotic Syndrome. She was responding really well to the steroids, but lately her protein numbers in her urine have gone back up. We have been decreasing the daily pill count, but had to start going back up again today and will see her specialist tomorrow to discuss what the next plan is. The journey continues…

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