Madi & Daddy were out the door bright and early for Physio with Stephanie. We wanted to change things up and bring Madi to Stephanie when she was fresh in the morning instead of at the end of a long day. Madi did a great job and loved showing Daddy what she has been working on. They were impressed with the amount of independent steps she was taking and how much smoother her transitions looked.
Once Physio was over, Daddy took Madi to her conductive education camp at March of Dimes. She worked with her canes a lot today and loved shooting Monica with a water gun!
After camp, Madi headed to see her orthotist Eric. He was able to make the final adjustments to her AFO’s, fit her SMO’s and then do serial casting. Madi’s last round of casting was in St Louis, 1 week after her surgery which was just over 3 months ago. Madi just went through a big growth spurt and her left heel has been having a hard time stretching past neutral position so it was time to give it some help. She was so brave during the casting and just played with her toys – it didn’t bother her at all. Her left foot measured +5 where her right foot measured +15, so there was a 10 degree difference between both feet. We are hoping to get her left a little closer to her right measurements. She will have the cast removed in a week and then we will decide if it should go back on or not for another week depending on where it measures.
It’s so nice when you can see Madi’s therapy work transfer to her daily play. We are often finding Madison sitting now in side sit, long sit or crossed legs instead of the dreaded ‘W’ sit. She is getting much stronger in these positions which is great to see.
A special announcement from Madison to all her SDR friends:
The Mike Gregoire Memorial Golf Tournament is pleased to announce a funding opportunity for children who have had SDR at the St Louis Children’s Hospital and are now in post op therapies.
We understand the effort, time and financial demand the surgery has on families and we would like to help with some of the rehab costs once families return from St Louis.
Different therapies work for different kids, so we want to hear from you on how being chosen as a recipient of funds from the tournament will help your CP warrior with their rehab program.
Tournament Details:
Sunday October 1st, 2017
Deer Creek Golf Club
Golf, Dinner & Silent Auction
http://www.mikegregoirecharitygolf.com
Criteria:
Any child who has already had SDR with Dr Park at The St Louis Children’s Hospital, currently living in Ontario.
Funding Opportunity:
Selection made by the Golf Tournament Committee members.
How to apply:
Please send a 1 minute video of yourself and your warrior explaining how this potential funding opportunity will help you in your rehab journey.
Please send videos by Sunday September 10th to:
sdrfunding@outlook.com
The committee will announce the successful recipients before the date of the golf tournament
Giving Back:
We have been contacted by some families asking if they can be a part of Madi Moves initiatives in helping other families with their fundraising goals, once they have met or exceeded their own fundraising goals.
Here is your chance!
Ways you can give back:
*make a donation to Madi Moves or the tournament web page to contribute towards funds being distributed to other families
*attend the golf tournament or dinner to show your support for the SDR community
*make a silent auction or door prize donation
*volunteer your time on the day of the tournament
If you have any questions please feel free to send us a private message
Madi Moves 