Day 805: Dr. Park!

Today was a wonderful day. During a time that most people would feel stressed or anxious, we felt the most calm and ready. Dr Park met Madison today and assured us that the decision we have made is the best for her and her future. He was wonderful! Caring, calm, funny and so good with Madison. He watched her move, felt her legs, talked about her medical history and told us that all his original predictions for her are still the same. Having the surgery will allow her to have better postures, smoother transitions, be pain free and spasticity free and ultimately walk independently in all environments – in fact he feels she will be walking within the next year and believes she will make progress quickly. He also believes she will be able to be active in many different physical activities throughout life. Once the spasticity is removed, he will be able to get a better assessment of the length of her heel cords and hamstring muscles and determine if she should have serial casting done. He will know on Friday and if she needs it done she will get the casting next week. We will travel back to St Louis at her one year anniversary for a follow up and also see if PERCS muscle lengthening surgery will be needed when she is 5. 

Madi had her Physio assessment today and ordered new AFO’s, SMO’s, night braces, pink canes and walking sticks. 

Madison was awesome today! She was brave and did whatever was asked of her. Even though she is only three, we feel she has a very good idea that all of this that is happening right now will help her and she is very trusting of that – such an amazing little girl!

Thank you to everyone for all of your messages today and all of your support and love since the start of this journey almost a year ago. 

We are so ready for tomorrow!

We would appreciate prayers and well wishes starting at 7:30 tomorrow morning.


Day 804: Getting Ready For A Big Week!

Madi headed over to the St Louis Children’s Hospital today to map out where everything is and to get comfortable with everything on her own time and schedule. She loved seeing all the cool things around the hospital like the trains on the ceiling, animal art everywhere and how big and bright it was.

On the way back to the hotel she picked up some essentials for her week stay at the hospital and some lunch for everyone. 

Madi and Jack spent the rest of their day hanging out at the hotel to try and get some rest for the busy week ahead.

The bad weather finally let up for a bit and Madi was thrilled to spot a double rainbow! It was a sign for a good week ahead.

Bag and gifts packed for the morning when Madi gets to meet Dr Park and his team for the first time!