Madison had a visit with a team of doctors, nurses and physiotherapists at Bloorview today who are interested in bringing SDR surgery back to Toronto.
Just as Dr. Park from St. Louis has communicated, the Toronto team also feels that Madison would benefit from SDR.
Today was one of those days that is very difficult….. As a special needs parent you are often left to do your own research, advocate and fight for what is best for your child. You are left having to weed through information and make health care decisions that no one should ever have to make.
Mommy’s “lucky binder” always helps guide the conversation and inform those who need informing.
At the end of the stress, Madison’s smile always brings us back down to earth.
To be continued…