Madison was back at March of Dimes this morning. She was solo as Ben’s brother was home sick. She had a visitor from Bloorview observe the class. It was a physiotherapist who also works in their robotics division who is gathering some observations for her research. Madison’s teacher made a comment today about how strong Madison’s receptive language skills are. We agreed as we were quite impressed with how many instructions Madison was able to hold on to, mimic and follow through with. She did a great job with all her activities today.
Madison had an appointment this afternoon with her family doctor from the Ajax hospital. We discussed our concerns with Madison’s eating and sleeping and he gave us some good suggestions. We also discussed the need for upcoming vision and dentist appointments and checked in on her growth percentile chart. She is still following the same growth trends and continues to be on track with her height and weight. He was impressed with her cognitive abilities (colours, names of people, animals etc and memory) He also recommended that Madison was reaching the age to have an MRI to determine the area of damage to the brain, type of damage and development. We discussed some of the pros and cons and still remain “on the fence” as to our decision. He has put forward a referral to a neurologist at Sick Kids for us to meet and discuss our questions and concerns with a specialist. Any other parents of a child with a similar diagnosis to Madison – did you have this done? What were the benefits? What was your experience like? Thank goodness for calendars…these appointments are getting out of control! We may be searching for a personal assistant soon to maintain Madison’s schedule.
Madi Moves 