Author: katherineambos

LOVE catching Jack with a book! He does this all the time now. He wonders into Madison’s room, grabs a book from her shelf, wonders to another room in the house & then sits down to flip through it a few times.

Jack also has a love for basketball. He played in the gym at Variety Village for an hour shooting at the net while Madi had Physio.

Madison and Stephanie revisited ground transitions today, a “typical” milestone for an infant that Madison has been continuously working on for a few years. Although she has found ways to be functional with different sitting positions on the floor, today they practiced transitioning from kneeling- to side sit- to sitting with legs crossed…a skill that she can use daily during circle time in her classroom and in kindergarten in September. 

Madison had a great day with her aunts! She loves her computer time.

She’s obviously still recovering from her cold…even too sleepy to continue some computer fun

Madi and Ryan did lots of walking in the hot pool today to bring some relief to those stiff ankles and tight legs. We’ve discovered the perfect time slot when no one is there ! Private pool!

Madi’s friend Linda from Variety Village shared with us a blog written by a friend of hers. This entry highlights Madison and her love of her second home – Variety Village!

Blog about Madison – Link

Madi has recovered and is feeling more like herself again!

She had a great morning at school- Jack brought her sister a balloon and was happy to sit and watch music time in her class.

She was at Physio with Stephanie today and did a great job!

Today Madison and Jack took a time out from life to recover and rest from all the germs and lack of sleep.

These pictures pretty much sum up our day:

Jack was up most of the night last night with a bad cold and some flu like action… Yuk… No one slept well, so when Madi woke up somewhat chipper this morning, Mommy was shocked.

Her day was going well…

And then it ended like this…good old towels on the pillow- don’t fail us now.

Poor kid can’t catch a break. We would like to apologize to Pams couch and floor that got the worst of it. Cross your fingers for a quick turn around. 

Jack LOVES his big sister and only wants to do whatever she is doing. Today’s Physio was outside to get some fresh air. We dusted off Madison’s old bike, Jack jumped on – and away we went for some outdoor exercise. 

While Jack had his afternoon nap, Madi helped Mommy tidy up and get things organized for the week. Mommy found Madi several times sitting and watching… It was totally fine because Mommy was so happy with this sitting… No ‘w’ sit!

Mommy spent many mornings at V.V. as a kid and then as a young adult working, and now as a Mommy. Madison and Jack were up bright and early to go get some exercise. Madison had a gym class with Tiffany and Jack ran all over the place chasing his basketball. When class was done, Madi went for a workout around the track in her bike and then the two kiddos played and climbed together for a bit. 

Madi and Jack then went on an adventure to different stores to look for storage for their upcoming trip!

Madison has rebounded and is back to herself. Thanks everyone for all the kind messages!

Stephanie and Madison had an excellent session together today. They used every free minute to work on something specifically aligned with Madison’s goals. They practiced peddling on her bike on different inclines and flat surfaces and did lots of walking/transitions etc. in the kids gym and the snoozelin room. So much good work done in the hour- awesome to see!

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​There’s nothing better than making cupcakes with Nana after a day full of hard work.

Just when Mommy thought Madi had a free day to relax…no therapies…no appointments….. That changed very quick… Never a dull moment. Mommy picked up Madi from school and knew something was off. Madi’s teachers reported she was weepy most of the morning and wasn’t herself and complained of a sore tummy. On the way home from school Madi screamed and cried. Madi went to Nana’s to relax on the couch, but the pain and crying got worse. Mommy had never felt the kind of spasms and tone that were happening before with Madi’s little body. It was very intense. Madi headed down to Sick Kids with Mommy and Nana to get things checked out. After 6 hours, urine test in a cup (never thought that would be successful) and blood work she was feeling much better and nothing serious to report from the doctor. We are suspecting the passing of a kidney stone but she is now much more herself and snug in bed. Madi was so brave and such a trooper. Mommy and Nana were very proud of her. Thanks for all the help Nana!

Today at Physio, Madi and Stephanie worked on baby steps. When Madison tries to walk independently and takes slow, baby steps – she is usually successful and doesn’t fall. Today she took baby steps on the treadmill, walking to and from the stairs and in the field house. She tried taking big dinosaur steps to practice going up and down the stairs. 

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A big thank you to Malcolm and Scarborough Mixed Slo Pitch for their very generous donation towards Madison’s surgery!

http://ilovesports.ca/websites/leagues/softball/ontario/smspa/